By Brian Wolf, as told to Alie Pierce
"While working as a pastry chef in New York City, I have noticed some unusual symptoms, but due to the busy work schedule I didn't have time to do anything about it. It was only within two months of extreme fatigue that I went to see my doctor. It was back then, in April 2000, that I was diagnosed with Multiple Sclerosis and started to take prescribed medication.
Even with the continuing symptoms, which included extreme fatigue, I continued to work, up until my Multiple Sclerosis progressed with daily new added symptoms and MS medication that no longer agreed with me.
Photo courtesy / Brian Wolf
In addition to battling this disease through every day and night, I was also caring for my mother. My father passed away one year before my diagnosis.
Despite all these setbacks, I did fight back against Multiple Sclerosis with everything I had. I switched my MS medication to another, and pursued a different job as a bank teller for a few years. Sadly, due to my MS setbacks, I was let go and was unable to continue working.
From there on, I had started to attend MS groups in Northern New Jersey, as well as MS Society programs. I also began checking on-line for Multiple Sclerosis events in my area. I was very active, and communicated with my support group of friends any events and news I had found regarding Multiple Sclerosis, so that they could sign up for the events as well and learn any new available MS developments. The more people I met, my list kept expanding.
I was living independently, when I had a bad fall in my apartment. My sister and brother flew from California, found me a more accessible apartment in Northern New Jersey, and helped me with my move.
Now, I continue to be proactive in gathering and passing information about MS to all my friends, including attending MS groups zoom meetings in Northern New Jersey. There is a great deal of serious MS research work going on, and it is reasonable to hope that in the next several years, something will be found that arrests – or even cures – MS. So, there is hope. And I want for everyone - whether newly diagnosed or someone who has been battling MS for 20 + years, to have access to the newest MS information, and support. Ms no more."
Editor’s note: Alie Pierce is a human rights activist and disability advocate. She may be reached at Alie.WeekenderNJ@gmail.com. Follow Alie Pierce on Twitter & IG. Connect with WeekenderNJ on Facebook, Twitter and IG.